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Imagine this: your life is a battle with an unseen enemy. The invader strikes from the shadows, causing injury and chaos. It saps your strength and undermines everything meaningful. You fight alone, as no-one else can see or understand the beast - and they might even believe it's all invention.
An invisible illness is a disability the world doesn't notice, the lab test can't find, or both. They can be temporary or permanent. We often find our stories are told on our behalf, and overlaid with the messages and meanings of others. This book is a space where writers with experience of invisible illness (mainly their own) have chosen to speak in their own words and reclaim the narrative. Some have spoken directly, others in metaphor or poetry.
Invisible is in several parts. "Betrayals of the Body" focuses on physical symptoms such as chronic pain, "Serpents of the Mind" explores cognitive and mental issues, and a brief "Interlude" offers advice. Some recurring patterns and themes can be found: pain is often a monster or demon, and several of us are inspired by the metaphorical territory of music or water. These are explored in monochrome artwork and carefully-chosen vintage pieces.
This unique collection shows people dealing with adversity in their own ways. Multiple allergies, hypermobility, trigeminal neuralgia, brain injury, complex PTSD: these are some of our adversaries' names. There are moments of hope and strength, flashes of sarcasm, and at times human weakness and despair. We cannot be reduced to a single voice or explained away with a single story.
Invisible is an independent project raising money for ME Action in support of their advocacy work.
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