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"The Story of a Rebellious Eye Seeking Independence and the Human Who Learned to Negotiate with It"
Have you ever felt the world spinning out of control before your eyes while everyone around you sees everything perfectly normal? This is Simon Beider's journey through the bewildering labyrinth of Superior Oblique Myokymia (SOM), a neurological condition that causes involuntary contractions of the eye's superior oblique muscle, resulting in episodes of double or triple vision and uncontrollable eye movements. A condition so rare that "it doesn't even qualify to be on the list of rare diseases."
With an explosive mix of acidic humor and revealing honesty, Simon immerses us in his experience: from the first symptoms, a terrifying episode in a subway car, to his triumph over a condition that doctors assured him was "benign" (translation: "it won't kill you, it will just turn your life into a personal hell").
THIRD UPDATED EDITION. This completely renewed edition of the successful "Getting Out from the Funhouse Tunnel" -- originally published in English -- comes after more than 300 copies dowloaded internationally.
NEW EXCLUSIVE FEATURE! This edition includes free access to the Reader Companion Podcast, a series of conversations that explores aspects of each chapter. Reader Companion is the perfect experience to accompany your reading and make you feel part of a community that understands exactly what you're going through.
More than a medical testimony, this book is a survival guide, a manual of resilience, and a helping hand to those living with this invisible but devastating condition.
After 12 years without SOM symptoms thanks to a set of techniques detailed in these pages, this is an inspiring account of how to rebuild yourself when the world insists on spinning without your consent.
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